Babac, Ana; von Friedrichs, Verena; Litzkendorf, Svenja; Zeidler, Jan; Damm, Kathrin; Schulenburg, Johann-Matthias Graf von der
(London : BioMed Central, 2019)
Background
Many European countries have recently implemented national rare disease plans. Although the network is strengthening, especially on the macro and meso levels, patients still go a long way through healthcare ...